#EU2022FR High-Level Ministerial Conference: “Citizenship, Ethics and Health Data"

The conference was held on the 02/02/2022


High-Level Ministerial Conference: “Citizenship, Ethics and Health Data"

In the perspective of the creation of a European Health Data Space (EHDS) it remains a priority to offer European citizens a trust framework for digital health :
this major issue will be addressed from citizen, ethical, health systems and political perspectives, expressed by institutional experts and civil society representatives

Objective: This high-level conference, was organised by the Ministerial eHealth Delegation (DNS), it was an opportunity to formalise the values which will condition the development of digital health, and to clarify the principles which are set to be the pillars of the future European Health Data Space. The conference also aimed to underpin the European digital health strategy with a strong citizen-centered and ethics-based approach


Citizenship, Ethics and Health Data

Read the program


In order of presentation :

  • Adrien Taquet, Secretary of State for Child and Families Protection of France
  • Laura Létourneau, Co-Head of Digital Health Ministerial Delegation, France
  • Dominique Pon, Co-Head of Digital Health Ministerial Delegation, France
  • Sandra Gallina, European Commission, DG SANTE, Director General
  • Roberto Viola, European Commission DG CNECT, Deputy Director General
  • Pr Ilona Kickbusch, Founder and Chair of the Global Health Centre at the Graduate Institute of International and Development Studies in Geneva, Switzerland
  • Pr Riccardo Bellazzi, Professor, Department Chair in the Department of Electrical, Computer and Biomedical Engineering, University of Pavia, Italy
  • Pr Jean-Gabriel Ganascia, Professor at Sorbonne University, former President of the ethics committee of the French National Center for Scientific Research (CNRS)
  • Ron Roozendaal, Co-Chair of EU eHealth Network and Director of Information Policy, Ministry of Health, Welfare and Sport, The Netherlands
  • Cecilia Bonefeld-Dahl, Director-General, DIGITALEUROPE
  • Ioana-Maria Gligor, DG SANTE, Head of Unit European Reference Networks and Digital Health
  • Marco Marsella, European Commission, DG CNECT, Head of Unit, eHealth, Well-Being and Ageing
  • Loic Chabanier, Partner EY Consulting, France
  • Olivier Véran, Minister of Solidarity and Health, France
  • Ministers of Health of 26 Member States

Videoconference (The conference will be simultaneously translated into five languages: French, English, German, Spanish and Italian)

Professor Ilona Kickbusch’s keynote

The meaning of "citizenship", ethics and health data

Watch Professor Ilona Kickbusch 's speech for the Ministerial Conference*, entitled "The meaning of "citizenship", ethics and health data".

Founder and Chair of the Global Health Centre at the Graduate Institute of International and Development Studies in Geneva, Switzerland, Professor Kickbusch shared her deep conviction that we need to apply a broader view that situates digital health within a whole society perspective and a solidarity based digital governance framework.

Professor Kickbusch explains that a "European approach to health data must be grounded in a new understanding of digital health citizenship and on a strong set of values and ethical principles, including data solidarity, equity, digital stewardship and trust, accountability and public participation".

Keynote slides are accessible here

To go further:
KEYNOTE Kickbusch European High-Level Conference 2.2.2022
Governing health futures 2030: Growing up in a digital world

* This video was recorded remotely during the High-Level Ministerial Conference on “Citizenship, Ethics and Health Data"

Discover all the other events

22 eHealth events are planned during the French Presidency, discover them all on our website: 

Access the program and events calendar
#EU2022FR FR Presidency of the European Council FPUE