#EU2022FR High-Level Ministerial Conference: “Citizenship, Ethics and Health Data"

The conference was held on the 02/02/2022

High-Level Ministerial Conference: “Citizenship, Ethics and Health Data"

In the perspective of the creation of a European Health Data Space (EHDS) it remains a priority to offer European citizens a trust framework for digital health :
this major issue will be addressed from citizen, ethical, health systems and political perspectives, expressed by institutional experts and civil society representatives

Objective: This high-level conference, was organised by the Ministerial eHealth Delegation (DNS), it was an opportunity to formalise the values which will condition the development of digital health, and to clarify the principles which are set to be the pillars of the future European Health Data Space. The conference also aimed to underpin the European digital health strategy with a strong citizen-centered and ethics-based approach

Thematics	Citizenship, Ethics and Health Data Read the program
Guests	In order of presentation : Adrien Taquet, Secretary of State for Child and Families Protection of France Laura Létourneau, Co-Head of Digital Health Ministerial Delegation, France Dominique Pon, Co-Head of Digital Health Ministerial Delegation, France Sandra Gallina, European Commission, DG SANTE, Director General Roberto Viola, European Commission DG CNECT, Deputy Director General Pr Ilona Kickbusch, Founder and Chair of the Global Health Centre at the Graduate Institute of International and Development Studies in Geneva, Switzerland Pr Riccardo Bellazzi, Professor, Department Chair in the Department of Electrical, Computer and Biomedical Engineering, University of Pavia, Italy Pr Jean-Gabriel Ganascia, Professor at Sorbonne University, former President of the ethics committee of the French National Center for Scientific Research (CNRS) Ron Roozendaal, Co-Chair of EU eHealth Network and Director of Information Policy, Ministry of Health, Welfare and Sport, The Netherlands Cecilia Bonefeld-Dahl, Director-General, DIGITALEUROPE Ioana-Maria Gligor, DG SANTE, Head of Unit European Reference Networks and Digital Health Marco Marsella, European Commission, DG CNECT, Head of Unit, eHealth, Well-Being and Ageing Loic Chabanier, Partner EY Consulting, France Olivier Véran, Minister of Solidarity and Health, France Ministers of Health of 26 Member States
Format	Videoconference (The conference will be simultaneously translated into five languages: French, English, German, Spanish and Italian)

Thematics

Citizenship, Ethics and Health Data

Read the program

Guests

In order of presentation :

Adrien Taquet, Secretary of State for Child and Families Protection of France
Laura Létourneau, Co-Head of Digital Health Ministerial Delegation, France
Dominique Pon, Co-Head of Digital Health Ministerial Delegation, France
Sandra Gallina, European Commission, DG SANTE, Director General
Roberto Viola, European Commission DG CNECT, Deputy Director General
Pr Ilona Kickbusch, Founder and Chair of the Global Health Centre at the Graduate Institute of International and Development Studies in Geneva, Switzerland
Pr Riccardo Bellazzi, Professor, Department Chair in the Department of Electrical, Computer and Biomedical Engineering, University of Pavia, Italy
Pr Jean-Gabriel Ganascia, Professor at Sorbonne University, former President of the ethics committee of the French National Center for Scientific Research (CNRS)
Ron Roozendaal, Co-Chair of EU eHealth Network and Director of Information Policy, Ministry of Health, Welfare and Sport, The Netherlands
Cecilia Bonefeld-Dahl, Director-General, DIGITALEUROPE
Ioana-Maria Gligor, DG SANTE, Head of Unit European Reference Networks and Digital Health
Marco Marsella, European Commission, DG CNECT, Head of Unit, eHealth, Well-Being and Ageing
Loic Chabanier, Partner EY Consulting, France
Olivier Véran, Minister of Solidarity and Health, France
Ministers of Health of 26 Member States

Format

Videoconference (The conference will be simultaneously translated into five languages: French, English, German, Spanish and Italian)

Professor Ilona Kickbusch’s keynote

The meaning of "citizenship", ethics and health data

Watch Professor Ilona Kickbusch 's speech for the Ministerial Conference*, entitled "The meaning of "citizenship", ethics and health data".

Founder and Chair of the Global Health Centre at the Graduate Institute of International and Development Studies in Geneva, Switzerland, Professor Kickbusch shared her deep conviction that we need to apply a broader view that situates digital health within a whole society perspective and a solidarity based digital governance framework.

Professor Kickbusch explains that a "European approach to health data must be grounded in a new understanding of digital health citizenship and on a strong set of values and ethical principles, including data solidarity, equity, digital stewardship and trust, accountability and public participation".

Keynote slides are accessible here

To go further:
KEYNOTE Kickbusch European High-Level Conference 2.2.2022
Governing health futures 2030: Growing up in a digital world
GHFutures2030FindingsRecommendations
GHF2030-DTH LAB_CONCEPT

* This video was recorded remotely during the High-Level Ministerial Conference on “Citizenship, Ethics and Health Data"